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There’s lots happening, but I can’t look away from my Loop app at the moment because I’m so damn excited and obsessed! (I’ll be writing something about it sometime this week.)

But if I wasn’t doing that, I’d be (re)reading these things…

Why it costs so much to see a specialist
I’ve always paid to see my endos privately. In fact, I generally ‘go private’ for all my healthcare needs – I can’t remember the last time I was bulk-billed for a medical consultation.

It does cost a lot, and I am grateful I can afford it, but the excessive costs often discourage people from seeking the right care they need. Of course, we do have excellent public health in Australia. My choice for seeing HCPs privately include wanting continuity of care, and not being subject to frequently very long waiting periods.

This piece in The Conversation looks at why specialist care is so expensive. And what can be done to reduce costs.

Lookiee! A diabetes Wookiee!
For those who participate in OzDOC (and other DOC activities) you may have come across David Burren. I met David last week to talk all things tech (actually, I just fired questions at him about Loop and he patiently answered them without rolling his eyes even once). He’s started a diabetes blog all about diabetes and technology and, thankfully, it is in language that even I can understand.

Check out David’s Bionic Wookiee blog here.

Statues are like tumo(u)rs.
With all the nonsense going on in America at the moment, this piece from McSweeney’s most adequately explains why the ridiculous idea that statues commemorating less than favourable moments in history need to remain. Here’s my favourite part:

I view this tumor as an important symbol of your body’s history and heritage. Removing the tumor would be yet another example of misguided medical correctness in today’s liberal America. I protest this surgery and refuse to whitewash your rich medical history. The tumor must be kept prominently displayed inside your body.

Do better, America. We all know you can.

More on what’s on the inside
Mel Seed’s blog about normalising mental healthcare in diabetes follows on from DX2Melbourne and is well worth a read. Read it here. 

Diabetes is just…
This…

Faster insulin coming to Aus
A couple of weeks ago, I shared on my socials the exciting news that ultra-fast insulin, FIASP, had received TGA registration. No actual ‘launch’ date info as yet, although next week is the ADS ADEA Annual Scientific Meeting, so we may hear more then.

And in news that we already know…
Apparently, CGM is not just for abdomens anymore… File under ‘No Shit Sherlock’.

Swear-y
My blog emails keep getting blocked by the profanity filter at my husband’s work. Every now and then, he forwards me the message he’s received which states that the email was not delivered due to ‘offensive language’. #SwearyWife

This Twitter account definitely wouldn’t make it through, but it’s one of the best things I’ve seen on the interwebs for a while. I’d like to print THIS up poster size and put it on the wall of my office/wear it on a t-shirt, but perhaps that’s not appropriate.

D-parents and sharing the scary parts of their child’s diabetes online
I’ve linked to Moira McCarthy’s writing before because I think that she gets it right every single time she writes about the role of parents in their child’s diabetes.

This piece asks parents to consider if sharing their child’s scary and dramatic diabetes stories online is doing more harm than good. (I rather clumsily explored a similar issue last year in this post.)

Read her piece at ASweetLife here.

4Ts on Diabetes Mine…
Last month, during National Diabetes Week, in an endeavour to get our 4Ts message out as widely as possible, the good folks at Diabetes Mine allowed me to write a little about our campaign. You can read that here.

Living and loving someone with diabetes
As much as I think I am the most delightful and easy-to-live-with person in all the world, I have to admit that diabetes can and does impact on all relationships… and makes me perhaps not the most delightful and easy-to-live-with person. Aaron and I chalked up 23 years together yesterday. Diabetes has been part of the equation for over 19 of those years.

Diabetes advocates Nicole Johnson and Lorraine Stiehl have written a new book which has been called a practical guide to loving a person with diabetes. I’ve ordered a copy and will be leaving relevant pages open for my loved ones to read.

You can get a copy of What To Do When Your Partner Has Diabetes: A Survival Guide from Amazon. 

Meme-y and true
There are a lot of diabetes memes out there, but sometimes I see one that just hits the mark so perfectly. Such as this from a TuDiabetes community member:

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A week away from blogging during what happened to be a super busy week in the diabetes world. Let’s play catch up!

ICYMI #1

Bigfoot Biomedical + Abbott Diabetes Care. Details here. Great commentary from diaTribe here, and Diabetes Mine here.

ICYMI #2

Did you see Adam Browne’s piece on diaTribe about the worst food advice he’s received?

When I was diagnosed I was told ‘Eat as much low GI food as you like’ and I remember at the time that not sitting well with me. It turned out to be a disaster because I wasn’t taught to count carbs, but there was this expectation that I would be eating large quantities of rice, pasta, bread and potatoes to match the insulin dose I was prescribed.

I do wonder how different things would be had I instead been given advice that helped me manage my glucose levels, rather than feel I was constantly scuffling with them!

Vaccine buzz

I’ve always been interested in the research developing vaccinations to prevent T1D. This out of Finland was doing the rounds yesterday.

I for one welcome our new robot doctors

This article from Forbes is all about how robots will be taking on an increased role in healthcare.

#LanguageMatters in the UK

After ADA, I wrote that there was some excitement from the UK about developing a language position statement. This blog post from Rosie Walker (Successful Diabetes) and Anne Cooper got the ball rolling in terms of getting some feedback from people with diabetes with a call out for people to have their say.

(And there is a tweet chat about this very topic, which for those playing at home (i.e. Australia) kicks off on Wednesday morning at 5am. I’m going to try to be there, but seriously, I suspect I’ll read up on it at a decent hour once the coffee kicks in!)

And while we’re talking language

I am interested in language beyond just the diabetes space and was interested to read this piece about US Senator John McCain’s diagnosis of brain cancer and the inevitable rhetoric that followed. Many promised that Senator McCain would survive because he is a ‘fighter’ and a ‘battler’.

I don’t like using this sort of language to discuss health conditions, because in a fight, there is always a winner and a loser. And it suggests that people who do not survive must not have fought or battled hard enough when we know that is absolutely not true.

Why I write…

There was a lot in this piece on Medivizor from Stephanie Zimmerman, where she shares why she writes about healthcare.

Type 1 and the egg

This is a beautiful and so simple metaphor by  Maureen, who tweets as @MumofType1 to explain what living with type 1 is all about for her son.

How much access do you have to your HCP notes?

This study looked into the experiences of healthcare users with reading and providing feedback on their visit notes.

#HelloMyNameIs heading to Sydney

If you are in Sydney on 26 September, you may be interested in this free event about the #HelloMyNameIs campaign which was created by Dr Kate Granger, (I wrote about the campaign here). This week marks the anniversary of Kate’s death, and her husband, Chris Pointon, will speak about the movement. 

And finally something funny…except it’s not

Gwyneth Paltrow is an acteress, so why anyone would seek medical advice from her is a little confusing. But apparently, she has armed herself with a team of healthcare hacks professionals so that she feels that she is more than qualified to sprout wellness rubbish.

In recent times she has faced the wrath of the science community on Twitter because, amongst other absurd ideas, she suggested that women should shove a jade egg up their vaginas to…actually, I’m not really sure why. I’m not going to comment on that (beyond saying: don’t do it) because superhero OB/GYN Dr Jen Gunter has already done that.

But when one of her healthcare hacks starts talking about autoimmune conditions, you bet I’m going to chime in. Especially, when one of them, Dr Steven Gundry, claims this: ‘I have yet to see an autoimmune disease that cannot be cured or put into remission by simple dietary changes and supplementation’ and then goes on to suggest which supplements will cure autoimmune diseases. Stop it!

Gwyneth – I really liked you in that movie about deadly viruses (possibly because you died in the first 15 mins), but you need to really shush now about healthcare. And stop suggesting women shove jade eggs up our vaginas, for god’s sake!

 

It’s cold. And rainy. And miserable. And I have a sore throat that is making me whinge. All I want is soup.

Here are some things that are doing their best to brighten my day.

My Apple Watch works!!

Truthfully, my Apple Watch has always worked (both the first and second series watches I’ve owned). But it now finally working exactly how I imagined it.

The Dex 5 app update last week finally, oh finally, integrated with Apple Watches. So now this happens. (And I can stop needing to divide by 18 which is what I was doing after sneakily downloading the US version of the Dex 5 app last year…)

At this stage, ‘followers’ cannot see their friend’s/family member’s glucose readings on their watch, still needing to use the Share app on their phone. (But apparently, this functionality is coming soon).

You could win….

….a year’s worth of Freestyle Libre products. Just by entering this competition. Go!! (Only open to Aussie residents.)

Tell me a story, doctor…

As a huge promotor of listening to and sharing stories about health and healthcare, I was interested in this article from Stanford MedX.

As much as I love hearing the tales of those living with diabetes (and other health conditions too), I also want to hear the stories of healthcare professionals. Why do they do what they do? What drives them? What are some experiences that they always remember or wish they had done differently? What are their challenges and how to they manage the disappointments and frustrations? And celebrate the successes? I want to know these things to better understand what shapes them.

Bakers gonna bake

I’ve loved baking for as long as I can remember. My 30th birthday gift to myself was a firetruck-red Kitchen Aid stand mixer which gets a run at least a couple of days each and every week.

Baking makes me feel good. The predictability of results is wonderful. It allows me to showcase the foods that are in season at different times of the years. Being a regular baker means than anytime friends drop by for coffee, they’ll be offered a biscuit made a day or two earlier. And it means that I can easily give gifts to friends, family, colleagues, neighbours, the guys working on the building site across the road…

This piece in the Huffington Post explores why we feel so good when we bake for others.

Also, I think I need this.

Messed-up basals

I’m desperately trying to tidy up my basal rates which are clearly in need of a good shake up. I started Monday and straight away could see this was going to be a long – and probably painful – process. Watch this space…

#WorldImmunisationWeek

It’s World Immunisation Week this week, which is a perfect time to check if you are up to date with all your immunisations and book into get your flu vax if you’ve not already had it.

After I had my flu shot last week, I foolishly got into an argument with a couple of people who told me they ‘don’t belive in vaccinations’, to which I replied ‘You don’t get to ‘not believe’ in vaccinations. They are real. Vaccinations are not fucking Santa Claus’. Then someone suggested I should get that on a t-shirt, which I just might do. In the meantime. I made a poster, which you should feel free to share with fools.

Cold weather = hot books

With the rainy, grey days and nights ahead, it’s a perfect time to get comfy in front of the fire and get reading. I most sneakily used the ‘ice breaker’ at the Diabetes Advocates Day (#DAdvocatesAU) I facilitated a few weeks ago to get some new book recommendations from the attendees. That list is safely tucked away for …well, for a rainy day.

This weekend I rushed out to buy the book that just won the Stellar Prize (a literary award celebrating Australian women’s writing) and what a delight this book has turned out to be. It’s called Museum of Modern Love by Heather Rose. I’m rationing my reading of it – only a chapter each day; two at the most – to make it last. The writing is exquisite. It’s set in New York and is taking me back to wandering the streets and galleries of my favourite city. And desperately making me want to go back. Do look it up!

New diabetes book coming soon

While we’re talking books, Diatribe’s Adam Brown has written a new book that is due out soon. I’d probably read a shopping list Adam wrote because he is a fabulous writer and I always find something to take away for my own diabetes management in what he writes. So I’m more than a little excited that a whole book of this wisdom is due out soon.

Adam’s book is called Bright Spots and Landmines (with a subheading of The Diabetes Guide I Wish Someone Had Given Me). Generously, e-copies of the book are free – you can register to get yours here when it is launched in the coming months.

Also coming soon (but not soon enough) – new faster insulin

Novo Nordisk has launched its new ultra-fast insulin (Fiasp) into lucky selected markets.

Please can we have some here in Australia?? No news on that as yet…

Health Professional Grant

If you’re a healthcare professional member of Diabetes Victoria, you can apply here for this year’s Gwen Scott Grant.

Trolling is pure evil. Except for this…

Pete Souza was the official photographer for the Obama Whitehouse and took thousands upon thousands of photos during his tenure.

In recent months, he has been posting photos from the Obama Administration that are very clearly trolling Trump, comparing the new Administration’s blunders with the class and professionalism exhibited by Obama and his team. It is very cheeky and just so damn funny. This article explains more.

An honest weather app

And finally, have you installed the WTForecast app yet? You should. It gives authentic and accurate weather updates for wherever you are in the world.

Current situation here explaining current miserable mood:

 

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